Systematic screening for late sequelae after colorectal cancer
We are currently exploring the feasibility of a new approach to follow up after colorectal cancer (CRC). Via online surveys we aim at identifying all patients requiring treatment of late sequelae after CRC.
Surgically treated CRC patients receive a link to an online survey 3, 12, 24, and 36 months after surgery. Patients who have had a temporary diverting stoma also receive the survey 3 months after the stoma reversal. The survey can be completed on a computer, mobile phone, or tablet. Patients who are not online receive a paper version of the questionnaire.
The survey consists of validated questionnaires and a number of ad hoc items covering all known, and potentially treatable, late sequelae after CRC. Both colon- and rectal cancer patients answer questions about bowel function, diet and quality of life, while the survey for rectal cancer patients in addition includes questions regarding urinary- and sexual function and chronic pain.
Patients who indicate late sequelae and an interest in being contacted, receive a call from the project nurse, who presents treatment options and refers to specialists, if relevant.
Measuring the effect of treatment of late sequelae
All patients who receive treatment for late sequelae such as bowel-, urinary-, or sexual dysfunction, or chronic pain will be treated according to pre-defined treatment algorithms. Each patient will complete a detailed online survey at baseline, and again 3 and 12 months after the last visit. The survey is aiming at the specific problem the patient is being treated for, and the purpose is to measure the effect of all treatments for late sequelae offered in the Late sequelae clinic.